Review of the 12th Edition of the European Conference on Rare Diseases and Orphan Products (ECRD) 2024

ECRD, the leading patient-shaped, patientled, and patient-organised space, is co-organised by Orphanet and partner organisations of the European Organisation for Rare Diseases (EURORDIS-Rare Diseases Europe).The 2024 hybrid event saw approximately 300 in-person delegates and 400 attendees from around the world joining online to address the complex challenges faced by people living with rare diseases (PLWRD).Considered the heart of the European Union (EU), Brussels provided the ideal backdrop for ECRD 2024, which set to focus on driving transformative change through policy, in light of the impending European election.Spanning the course of 2 days, attendees including patients and caregivers, policy makers, healthcare professionals, researchers, and representatives from both industry and the private sector, had the opportunity to attend a plethora of sessions delivered by 50 expert speakers.