Pd02-01 the Personal Patient Profile Decisional Tool for Patients With Bladder Cancer (P3-Bc): A Pilot Usability Study

You have accessJournal of UrologyBladder Cancer: Invasive I (PD02)1 May 2024PD02-01 THE PERSONAL PATIENT PROFILE DECISIONAL TOOL FOR PATIENTS WITH BLADDER CANCER (P3-BC): A PILOT USABILITY STUDY Nihal E. Mohamed, Donna Berry, Bill Lober, Isabella E. Johnson, Talia E. Korn, John Sfakianos, Reza E. Mehrazin, and Peter Wiklund Nihal E. MohamedNihal E. Mohamed , Donna BerryDonna Berry , Bill LoberBill Lober , Isabella E. JohnsonIsabella E. Johnson , Talia E. KornTalia E. Korn , John SfakianosJohn Sfakianos , Reza E. MehrazinReza E. Mehrazin , and Peter WiklundPeter Wiklund View All Author Informationhttps://doi.org/10.1097/01.JU.0001008836.73392.92.01AboutPDF ToolsAdd to favoritesDownload CitationsTrack CitationsPermissionsReprints ShareFacebookLinked InTwitterEmail Abstract INTRODUCTION AND OBJECTIVE: Introduction—Interventions that improve patient decisions about target cancer treatments have been shown to improve communication and shared decision making (SDM). Objective—To examine the usability and acceptability of a web-based patient decisional tool to facilitate SDM about urinary diversion procedures for muscle invasive bladder cancer (MIBC). METHODS: A tailored, interactive web-based communication program for MIBC patients was developed based on our qualitative focus groups, prior work on prostate cancer patients, and the International Patient Decision Aid Standards (IPDAS). The development process of the P3-BC involved: 1) building the content of the P3-BC by web design experts, 2) combining key components of SDM and patient support (e.g., videos of patients modeling self-care activities) with the unique tailoring and interactive features of a web-based platform, and 3) conducting usability testing to obtain feedback from recently diagnosed MIBC patients undergoing cystectomy and urinary diversion. RESULTS: Focus groups and patient interviews (n=30 total participants) provided input on the content of the P3-BC program on specific areas related to information about urinary diversions and MIBC, value clarification, decision making, and patient support. A pilot study with 9 newly diagnosed MIBC patients was conducted. Favorable responses were obtained about the program acceptability and usability by patients regardless of age, race, and computer and internet experience. The program received high ratings for ease of use and overall usability (Mean System Usability Score of 74 out of 100; minimum=57, maximum 91). CONCLUSIONS: Study data showed high acceptability and usability of the P3-BC tool designed to improve SDM about urinary diversion among MIBC patients. A multidisciplinary design team and an iterative evaluation process with patients treated with cystectomy for MIBC were instrumental in the development of a usable and well-received web based SDM program. Source of Funding: The personal patient profile decision support for patients with bladder cancer-NINR/NIH-1 R21 NR018942 © 2024 by American Urological Association Education and Research, Inc.FiguresReferencesRelatedDetails Volume 211Issue 5SMay 2024Page: e69 Advertisement Copyright & Permissions© 2024 by American Urological Association Education and Research, Inc.Metrics Author Information Nihal E. Mohamed More articles by this author Donna Berry More articles by this author Bill Lober More articles by this author Isabella E. Johnson More articles by this author Talia E. Korn More articles by this author John Sfakianos More articles by this author Reza E. Mehrazin More articles by this author Peter Wiklund More articles by this author Expand All Advertisement PDF downloadLoading ...