Social Determinants of Health, the Diagnostic Odyssey, and Genetic Testing for Global Developmental Delay/Intellectual Disability: A Qualitative Study | Synapse
March 3, 2026Open Access
Social Determinants of Health, the Diagnostic Odyssey, and Genetic Testing for Global Developmental Delay/Intellectual Disability: A Qualitative Study
Key Points
Social determinants of health significantly influence the diagnostic journey for intellectual disability.
A diagnostic odyssey in genetic testing often delays accurate understanding of developmental delay.
Qualitative study emphasizes the challenges families face in navigating health systems for genetic testing.
Interactions between social factors and genetic testing can lead to better management strategies for developmental conditions.