Carers highlighted psychosocial strains of the multi-faceted caregiving roles-including advocacy, education and protection. One-size-fits-all approaches meant support services were more burdensome than helpful, leaving carers feeling powerless and marginalised, with limited reports of good practice. The findings can inform care services about supporting these families and individuals with idiosyncratic and intersecting needs.
Yates et al. (Sun,) studied this question.