Key points are not available for this paper at this time.
Kathy died 18 months ago.She was 28 years old.She had cerebral palsy and a severe learning disability from birth.When she was 4 she developed juvenile rheumatoid arthritis; at 9 she began to suffer from grand mal seizures which became progressively more difficult to control.In her teens Kathy became extremely ill with collagenous colitis.Towards the end of her life Kathy could not speak or walk, and she needed constant attention.At times her colitis was so severe that she had to be fed tiny amounts of liquid formula every 10 minutes through a nasogastric tube."There never seemed to be a suitable opportunity to explain the positive aspects of Kathy's life."Kathy's death was a tragedy to her parents.
Kahtan et al. (Sat,) studied this question.