PD40-09 “WHAT DO YOU MEAN BY a ‘RISK’? I’D LIKE TO SEE THAT PRESENTED BETTER”: A QUALITATIVE STUDY EXPLORING PATIENT PREFERENCES ABOUT PROSTATE CANCER RISK ASSESSMENT AND COMMUNICATION

You have accessJournal of UrologyHealth Services Research: Practice Patterns, Quality of Life and Shared Decision Making III (PD40)1 May 2024PD40-09 "WHAT DO YOU MEAN BY a 'RISK'? I'D LIKE TO SEE THAT PRESENTED BETTER": A QUALITATIVE STUDY EXPLORING PATIENT PREFERENCES ABOUT PROSTATE CANCER RISK ASSESSMENT AND COMMUNICATION Ryan A. Sutherland, Aleksandra M. Golos, and Michael S. Leapman Ryan A. SutherlandRyan A. Sutherland , Aleksandra M. GolosAleksandra M. Golos , and Michael S. LeapmanMichael S. Leapman View All Author Informationhttps://doi.org/10.1097/01.JU.0001009356.04608.d5.09AboutPDF ToolsAdd to favoritesDownload CitationsTrack CitationsPermissionsReprints ShareFacebookLinked InTwitterEmail Abstract INTRODUCTION AND OBJECTIVE: Patient-facing risk assessment tools are increasingly used to facilitate decision-making for patients with localized prostate cancer considering active surveillance. Our aim was to understand patient preferences regarding prostate cancer risk communication and identify best practices for patient-facing risk communication tools. METHODS: We conducted semi-structured interviews with patients with low- to intermediate-risk prostate cancer enrolled in active surveillance to monitor disease progression. We purposively sampled those who had received genomic testing, MRI-ultrasound fusion biopsy, or prostate MRI, oversampling Black and Latino patients. After reaching thematic saturation, we performed conventional content analysis to generate themes and practice recommendations. RESULTS: Our sample comprised n=20 patients with a mean age of 68 years old (range = 51-79). 14 (70%) participants identified as white, 5 (20%) as Black, and 2 (10%) as Latino. We identified themes related to patient understanding of prostate cancer risk, communication of risk information, and assessment of communication preferences. Overall, participants endorsed a range of preferences for the communication of prostate cancer risk information, including discrete versus qualitative descriptions, statistics, and data visualization. Preferences were shaped by participants' general tendency to engage with or avoid health information, professional background, health literacy, and exposure to others with prostate cancer. Three practice recommendations emerged: 1) patients should be offered clearer tracking of changes in prostate cancer risk or progression over time; 2) communication tools should convey risk estimates across multiple clinical tools (e.g., genomic testing, prostate MRI, PSA measurement); 3) preferences about prostate cancer risk communication should be assessed to allow for personalization. CONCLUSIONS: Patients expressed a diverse range of needs for prostate cancer risk communication tools that are sensitive to patient preferences, bridge gaps in understanding, and stay up to date with emerging diagnostic modalities. Clinical encounters should incorporate an assessment of patients' understanding of and preferences about prostate cancer risk communication. Source of Funding: National Cancer Institute (K08CA204732), Urological Research Foundation © 2024 by American Urological Association Education and Research, Inc.FiguresReferencesRelatedDetails Volume 211Issue 5SMay 2024Page: e823 Advertisement Copyright & Permissions© 2024 by American Urological Association Education and Research, Inc.Metrics Author Information Ryan A. Sutherland More articles by this author Aleksandra M. Golos More articles by this author Michael S. Leapman More articles by this author Expand All Advertisement PDF downloadLoading ...