What question did this study set out to answer?

This study aims to assess and compare patient and public preferences regarding visual function and treatment benefits in retinitis pigmentosa.

February 19, 2026Open Access

Valuing Maintenance of Visual Function in Retinitis Pigmentosa: A Discrete Choice Experiment with Patients and the General Public

Puntos clave

This study aims to assess and compare patient and public preferences regarding visual function and treatment benefits in retinitis pigmentosa.
Conducted a discrete choice experiment
Involved both patients with retinitis pigmentosa and the general public
Evaluated preferences related to visual function and life expectancy
Patients prioritize maintenance of visual function and quality of life over life expectancy alone
Public preferences lean more towards life expectancy than visual function
Significant differences in preferences highlight the importance of incorporating patient perspectives in treatment value assessments

Resumen

Patients with RP demonstrated preferences in VF-ADL and life expectancy associated with deterioration in visual function and potential treatment benefits that differ from those of the public. Considering patient preferences is critical to understand disease burden and estimate the value of therapeutic interventions.

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