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March 3, 2026
Open Access
Addressing the unmet challenge of pain in rare bone diseases: new insights from the RUDY UK registry
ML
Monique Legrand
Nuffield Orthopaedic Centre
FC
Franz Aaron Clemeno
RC
R. Chapurlat
Université Claude Bernard Lyon 1
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Puntos clave
Pain significantly impacts patients with rare bone diseases, influencing their quality of life.
Over 300 participants reported varying levels of pain, with specific biomarkers linked to severity.
Analysis of data from the RUDY UK registry provides insights into pain management strategies.
Findings may enable better clinical interventions for managing pain in these patients.
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Addressing the unmet challenge of pain in rare bone diseases: new insights from the RUDY UK registry | Synapse
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Legrand et al. (Thu,) studied this question.
synapsesocial.com/papers/69a75e05c6e9836116a285d7
https://doi.org/https://doi.org/10.1186/s13023-025-04167-4