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Quality of life in patients with epidermolysis bullosa | Synapse

May 11, 2009

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Quality of life in patients with epidermolysis bullosa

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Resumen

In patients with EB mental components of SF-36 scores are similar to the normal population. The perceived disease severity and skin area involved are relevant for QoL in all EB types/subtypes. EB imposes a heavy burden on the caregiver and the family. Psychological support and close monitoring of QoL may help patients with EB and their carers.

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Cite This Study

Tabolli et al. (Mon,) studied this question.

synapsesocial.com/papers/69d8f80a2c39562886ae3845 https://doi.org/https://doi.org/10.1111/j.1365-2133.2009.09306.x

Also Consider

Synapse has enriched 5 closely related papers on similar clinical questions. Consider them for comparative context:

1Update on the Family Strain Questionnaire: A Tool for the General Screening of Caregiving-Related Problems2004 · 51 citations
2The prevalence of epidermolysis bullosa in Scotland1997 · 67 citations
3A day in the life of a patient with DDEB2004 · 9 citations
4The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection.1992 · 34,003 citations
5The MOS 36-ltem Short-Form Health Survey (SF-36)1992 · 29,867 citations