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Parents of children with chronic illnesses experience tremendous burden when caring for their children at home. There are many challenges that are present throughout the course of chronic illnesses. To provide better care to the family caring for an ill child at home, clinicians must understand the experiences family members go through on a daily basis. The purpose of this article is to help clinicians better understand these parental experiences; by increasing clinicians' awareness, strategies can then be used, which will improve the outcome for the child, parents, and siblings.
Newton et al. (2012) studied this question.