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June 9, 2024International Journal of Care and Caring3 citationsOpen Access

‘Should we even have questions?’ From survey to exhibition – co-producing research about ‘mental health’ with carers and adults with learning disabilities

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KRKatherine Runswick‐ColeMSMartina SmithSRSara Ryan

Key Points

  • New insights emerged from family carers' lived experiences, disrupting traditional survey methods.
  • Co-production methods were pivotal in enriching the understanding of mental health from carers' perspectives.
  • The collaborative approach allows for deeper exploration into what matters most to those providing care support, including services and mental health aspects. Understanding family carers' experiences may enable policymakers to improve mental health services and support for learning disabilities.

Abstract

Carers’ mental health is often the focus of policy and research in Global North contexts. Research exploring carers’ views often uses survey methods to collect information about their experiences and views of services and support. However, the experiences of adult carers of adults with learning disabilities have often been marginalised within these domains. Here, we report on how, working together with family carers, we disrupted survey methods and generated new insights into what matters to family carers when sharing their experiences of care, mental health, services and support, as well as the crucial role of co-production in this research.

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Cite This Study

Runswick‐Cole et al. (2024) studied this question.

synapsesocial.com/papers/68e6586db6db6435875e72fbhttps://doi.org/10.1332/23978821y2024d000000051
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