Abstract Background Inflammatory bowel disease (IBD) requires lifelong management, and understanding patient perspectives is essential for optimizing care. This study evaluated real-world experiences, treatment satisfaction, communication, and unmet needs among Korean patients with IBD. Methods Self-administered, computer-aided, internet-based questionnaires were distributed to members of a Korean patient organization for IBD from October 23 to December 2, 2024. The questionnaire assessed demographics, disease characteristics, symptoms, treatment satisfaction, patient–physician communication, and psychosocial well-being. Results A total of 399 patients participated (CD 49.4%, UC 50.6%), including 208 males (52.1%) with a mean age of 34 years. Over half (56.1%) were diagnosed within six months of symptom onset. The most frequent symptoms affecting daily life were diarrhea (89%), abdominal pain (78%), anxiety or depression (61%), and hematochezia (61%). Conventional therapies were most commonly used, while 43% received advanced therapies, mainly anti-TNF agents (26%) or IL/JAK inhibitors (13%). Overall, 65% were satisfied with treatment, and 68% of advanced-therapy users preferred future oral options. Communication with the physican significantly influenced patient’s satisfaction. Within the past six months, 70% pantients had discussed treatment goals with their physian, yet 41% reported inadequate emotional support. Treatment goals were reviewed at every visit in 26% and only during treatment changes in 25%. Understanding of treatment goals of the patients was high, with a mean score of 88 on a 100-point scale. Adequate explanation of treatment initiation and modification was reported by 60% and 65%, respectively. Greater communication with their physician was associated with higher satisfaction. Anxiety or depression affected 50.9% of respondents, with greater future-related anxiety in those with shorter disease duration. Major unmet needs included public awareness (19%), restroom accessibility (18%), workplace or school support (14%), and psychological counseling (14%). Conclusion Korean patients with IBD experience substantial symptom and psychological burden, and treatment satisfaction is strongly influenced by effective patient–physician communication. Persistent unmet needs highlight the importance of more comprehensive, patient-centered care strategies. Reference: 1. Rubin DT, Sninsky C, Siegmund B, et al. International Perspectives on Management of Inflammatory Bowel Disease: Opinion Differences and Similarities Between Patients and Physicians From the IBD GAPPS Survey. Inflamm Bowel Dis 2021;27:1942-1953. Conflict of interest: Dr. Kim, Young Sun: No conflict of interest Kim, Seulji: No conflict of interest Oh, Dong Jun: No conflict of interest Jung, Sung-Ae: No conflict of interest
Kim et al. (Thu,) studied this question.