Development of a Novel Patient-Reported Outcome Diary to Capture and Monitor Home-Managed Pain Crises in Patients with Sickle Cell Disease

Key Points

• The SCPC eDiary effectively captures the frequency and severity of home-managed pain crises, enhancing patient monitoring.
• With a focus on patient-reported outcomes, the eDiary offers insights into the impact of pain on daily life.
• Further studies are necessary to evaluate the real-world use and performance of the eDiary in diverse clinical settings.
• The SCPC eDiary may support better management of pain crises, improving overall care for patients with sickle cell disease.