Improving Hematopoietic Cell Transplantation Follow-up Data: Completeness Index Assessment of Brazilian Transplant Registry Particpant Centers

Key Points

• Completeness index for data from participant centers reveals significant gaps in follow-up information.
• Only 60% of the expected data was collected, pointing to notable deficiencies in record-keeping practices.
• Analysis of registry records from 10 centers conducted to evaluate data completeness and identify trends.
• Findings call for standardized protocols to enhance data collection in Brazilian transplantation centers.