Mapping Transition of Care for Rare Endocrine Conditions: Findings from a Cross-Sectional Survey by the Endo-ERN ToC Working Group

Key Result

Transitional care for rare endocrine conditions across Europe requires standardized, patient-centered models to improve multidisciplinary collaboration and long-term outcomes.

Key Points

• This research aims to identify and map transitional care practices for rare endocrine conditions across Europe.
• Conducted a cross-sectional survey targeting health professionals in Europe.
• Gathered data on current practices and models of transitional care for rare endocrine conditions.
• Analyzed responses to identify gaps and areas for improvement.
• Reported a lack of standardized care models across multiple countries.
• Highlighted the need for harmonised tools to facilitate better multidisciplinary collaboration.
• Indicated potential improvements in long-term outcomes with standardized protocols.