What question did this study set out to answer?

The study aims to assess the access to care for women who are carriers of haemophilia in various treatment centres.

April 18, 2026Haemophilia0 citations

Evaluation of Access to Care for Women Carriers of Haemophilia in Haemophilia Treatment Centres: A Multinational Experience

CHCathy HarrisonBelfast Health and Social Care Trust MBM. BeijleveltAmsterdam UMC Location University of Amsterdam ECErica CrillyBritish Columbia Children's Hospital

Key Points

The study aims to assess the access to care for women who are carriers of haemophilia in various treatment centres.
Evaluated access to haemophilia care across multiple centres worldwide.
Compared healthcare system resources in diverse countries.
Identified gaps in service provision for women carriers.
Access to haemophilia care is inconsistent on a global scale.
Resource limitations contribute to gaps in service provision.
Many treatment centres are in high-income countries but lack adequate management for carriers.

Abstract

HC access to care remains inconsistent globally. Many of these gaps relate to different healthcare systems and resource limitations. Despite the majority of centres being large, from high income countries, the lack of demonstrable care around their management, highlights a gap in service provision for this underserved group.

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