Sydney Children’s Hospitals Network

Recent papers from Sydney Children’s Hospitals Network

1. ‘What Do We Do Next?’ Australian Carer Experiences of Recommendations in Neurodevelopmental Diagnostic Reports: A Qualitative Study Using the Framework MethodJournal of Paediatrics and Child Health · 2026
2. Research priority setting in childhood cancer: An integrative reviewJournal of Child Health Care · 2026
3. A systematic review of measures for the core outcomes of chest health in children and young people with cerebral palsy: a protocolNIHR Open Research · 2026
4. Predicting high‐risk novel benzodiazepines: A surveillance study of novel benzodiazepine detections and a case series of bromazolam exposures in New South Wales, AustraliaAddiction · 2026
5. Finding capacity in the NSW statewide PICU System—collaborative MVP simulation development in a complex stakeholder environmentJournal of the Operational Research Society · 2026
6. Envolvimento público no Registro Brasileiro de Paralisia Cerebral: um estudo exploratório, sequencial, de métodos mistosDevelopmental Medicine & Child Neurology · 2026
7. Biallelic variants in PIKFYVE cause a hypomyelinating leukodystrophy with endolysosomal dysfunctionBrain · 2026
8. Psychosocial Implications of Genome Sequencing for Inherited Cardiac Disease: Outcomes From the Australian Genomics Cardiovascular Disorders FlagshipHeart Lung and Circulation · 2026
9. Treatment adaptations to family-based treatment for children and adolescents with anorexia nervosa or atypical anorexia nervosa, and their evidence-base: a systematic reviewJournal of Eating Disorders · 2026
10. Public involvement in the Brazilian Cerebral Palsy Register: An exploratory, sequential, mixed‐methods studyDevelopmental Medicine & Child Neurology · 2026
11. Systematic Review of Patient‐ and Observer‐Reported Outcomes of Fatigue in Pediatric Neuromuscular DisordersMuscle & Nerve · 2026
12. Immunotherapy refractoriness and early post-alloHCT relapse define ultra-high-risk B-ALL after CD19 CAR T-cell therapyBlood Advances · 2026
13. Hyperammonaemia in Neonatal Transport: A Retrospective Statewide Review of Neonates Retrieved With Elevated AmmoniaJournal of Paediatrics and Child Health · 2026
14. A Quantitative Analysis of Street‐Level Drugs Seized in New South Wales, Australia: Purity, Dose and AdulterantsDrug and Alcohol Review · 2026
15. Second-phase implementation and sustainability strategies to increase and sustain antenatal care addressing alcohol consumption: a stepped-wedge controlled trialImplementation Science · 2026
16. IPNA clinical practice recommendations for the management of aHUS and secondary TMA in childrenPediatric Nephrology · 2026
17. Expanding the genotypic and phenotypic spectrum of PGAP1 deficiency: clinical and functional insights from 15 patientsEuropean Journal of Human Genetics · 2026
18. Self-reported exteroception across eating disorder presentations: associations with sociocultural factorsEating and Weight Disorders - Studies on Anorexia Bulimia and Obesity · 2026
19. Clinicians' Perspectives and Experiences of Barriers, Enablers and Implementation of a Child and Adolescent Mental Health Crisis Service: A Qualitative Evaluation of the Safeguards Team ProgramJournal of Child and Adolescent Psychiatric Nursing · 2026
20. The effect of self-efficacy, health-related quality of life, psychological distress, and age on transition readiness in adolescents and young adults with chronic health conditionsPsychology and Health · 2026