Dystrophic Epidermolysis Bullosa Research Association of America

Recent papers from Dystrophic Epidermolysis Bullosa Research Association of America

1. Team Management of Patients With Heart FailureCirculation · 2000
2. Diversity and inclusion at scientific conferencesSexual Health · 2026
3. Establishing a Consumer Panel to Inform Health Technology Assessment Processes and Policy: impact and insights from Singapore’s experienceInternational Journal of Technology Assessment in Health Care · 2026
4. The Midline Approach to Bilateral DIEP Flap Elevation: A Paradigm Shift to Improve Postoperative Integrity of the Abdominal WallPlastic & Reconstructive Surgery · 2026
5. Clinical and epidemiological study of topical steroid abuse in Nepal: an observational study from a tertiary hospitalSkin Health and Disease · 2025
6. Multicentre phase II open study assessing the efficacy and safety of apremilast in children and adults with epidermolysis bullosa simplex generalised: study protocol for the EBULO studyBMJ Open · 2025
7. Sephardic origins revealed for rare skin disorder, recessive dystrophic epidermolysis bullosa, in individuals carrying the unique c.6527insC mutationJournal of Medical Genetics · 2025
8. Genetic profiling of epidermolysis bullosa in a large Brazilian cohortClinical and Experimental Dermatology · 2025
9. The Second Tutorial on Retrieval-Enhanced Machine Learning: Synthesis and Opportunities2025
10. Management of oesophageal strictures in inherited epidermolysis bullosa: a clinical practice guidelineBritish Journal of Dermatology · 2025
11. Radiofrequency induced hyperthermia in non-muscle invasive bladder cancer: Oncologic outcomes in a real-world scenarioActas Urológicas Españolas (English Edition) · 2025
12. Quality‐of‐Life Measurement in Epidermolysis Bullosa. Position Statement of the European Academy of Dermatology and Venereology Task Force on Quality of Life and Patient‐Oriented Outcomes and External ExpertsInternational Journal of Dermatology · 2025
13. Scarcity induces conflict in Puerto Rican fisheriesEnvironmental Research Letters · 2024
14. Neonatal epidermolysis bullosa: a clinical practice guidelineBritish Journal of Dermatology · 2024
15. Capital Expenditure, Social Expenditure and Economic Growth Versus Poverty Level: A Study in North Maluku, IndonesiaInternational Journal of Professional Business Review · 2023
16. Consensus-based guidelines for the provision of palliative and end-of-life care for people living with epidermolysis bullosaOrphanet Journal of Rare Diseases · 2023
17. Purposes of Performance Appraisal: A Systematic Review and Agenda for Future ResearchInternational Journal of Professional Business Review · 2023
18. Enhancing Equitable Access to Rare Disease Diagnosis and Treatment around the World: A Review of Evidence, Policies, and ChallengesInternational Journal of Environmental Research and Public Health · 2023
19. Hand surgery and hand therapy clinical practice guideline for epidermolysis bullosaOrphanet Journal of Rare Diseases · 2022
20. Elucidating the Clinical Implications and Pathophysiology of Pulmonary Hypertension in Heart Failure With Preserved Ejection Fraction: A Call to Action: A Science Advisory From the American Heart AssociationCirculation · 2022