Children's Brain Tumor Foundation

Recent papers from Children's Brain Tumor Foundation

1. ID #965 Pediatric Low-Grade Glioma (pLGG) Caregiver–Provider Communication Challenges and OpportunitiesNeuro-Oncology Pediatrics · 2026
2. Social Participation and Navigation with Adolescent and Young Adult Brain Tumor Survivors: Usability and Potential BenefitsThe Open Journal of Occupational Therapy · 2023
3. Multimodal data fusion of adult and pediatric brain tumors with deep learning2022
4. Effectiveness of internet-based behavioral activation on quality of life among young adult survivors of childhood brain tumor: a randomized controlled trialDisability and Rehabilitation · 2022
5. Psychometric Validation of the PERMA-Profiler as a Well-Being Measure for Young Adult Survivors of Pediatric Central Nervous System TumorRehabilitation Counseling Bulletin · 2021
6. The Work Experience Survey: An on-the-job needs assessment tool to promote successful career outcomes for young adult central nervous system cancer survivorsJournal of Vocational Rehabilitation · 2020
7. A retrospective, quantitative assessment of disease burden in patients with leptomeningeal metastases from non-small-cell lung cancerNeuro-Oncology · 2019
8. Impact of self-management and functioning on the career development of young adult CNS SurvivorsJournal of Vocational Rehabilitation · 2019
9. Sex, Age, Anatomic Location, and Extent of Resection Influence Outcomes in Children With High-grade GliomaNeurosurgery · 2015
10. Parental Grief Expression in Online Cancer Support GroupsIllness Crisis & Loss · 2015
11. Developmental Work Personality Among Young Adult CNS Cancer Survivors: An Exploratory StudyAustralian Journal of Rehabilitation Counselling · 2013
12. Career readiness, developmental work personality and age of onset in young adult central nervous system survivorsDisability and Rehabilitation · 2012
13. Perspective of biochemical research in the neuronal ceroid‐lipofuscinosisAmerican Journal of Medical Genetics · 1992
14. Batten disease: Past, present, and futureAmerican Journal of Medical Genetics · 1988