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Debra

h-index: 8
Total citations: 452
Total papers: 16

Homepage: http://www.debra-austria.org/startseite.html

Recent papers from Debra

Health-related quality of life in adults with epidermolysis bullosa: a cross-sectional study in seven European countries using EQ-5D-5LOrphanet Journal of Rare Diseases · 2026
Neonatal epidermolysis bullosa: a clinical practice guidelineBritish Journal of Dermatology · 2024
The European Polysaccharide Network of Excellence (EPNOE) research roadmap 2040: Advanced strategies for exploiting the vast potential of polysaccharides as renewable bioresourcesCarbohydrate Polymers · 2023
Consensus-based guidelines for the provision of palliative and end-of-life care for people living with epidermolysis bullosaOrphanet Journal of Rare Diseases · 2023
Recommendations on pregnancy, childbirth and aftercare in epidermolysis bullosa: a consensus‐based guideline*British Journal of Dermatology · 2021
Psychosocial recommendations for the care of children and adults with epidermolysis bullosa and their family: evidence based guidelinesOrphanet Journal of Rare Diseases · 2019