Rare Cancers Australia

Recent papers from Rare Cancers Australia

1. The healthcare experience of solid rare cancer patients and their healthcare professionals: quantitative results from the eortc qol rare cancer studyBMC Cancer · 2026
2. “The uncharted waters of completely not knowing what’s next”: rare cancer patients’ experiences regarding navigating uncertaintySupportive Care in Cancer · 2026
3. Protocol for the co-design and development of PRIORITY-CONNECT SMS: An AI-driven, avatar-based multidisciplinary video intervention to enhance recovery after gastrointestinal cancer surgerySurgical Oncology Insight · 2026
4. Advancing equity in clinical trials through decentralized methodology: A national position statement.Journal of Clinical Oncology · 2026
5. Technology-Enabled (P)rehabilitation for Patients Undergoing Cancer Surgery: A Systematic Review and Meta-AnalysisCancers · 2026
6. ‘I knew I had to drive my own bus’: perspectives of patients and healthcare professionals on improving information provision to rare cancer survivorsJournal of Cancer Survivorship · 2025
7. Impact of BRCA1/2 status on young women’s sexual function, relationships, and reproduction after predictive genetic testing2025
8. What do patients with a rare cancer living in rural, regional or remote areas and stakeholders want from a peer support program? A qualitative studyBMC Cancer · 2025
9. A systematic review of peer support interventions to improve psychosocial functioning among cancer survivors: can findings be translated to survivors with a rare cancer living rurally?Orphanet Journal of Rare Diseases · 2024
10. Addressing cancer survivors’ information needs and satisfaction: a systematic review of potential intervention components for survivors with a rare cancer typeOrphanet Journal of Rare Diseases · 2024
11. Challenges and solutions to cancer-related financial toxicity according to Australian health professionals: qualitative results from a national surveySupportive Care in Cancer · 2023
12. Patient involvement in clinical trialsCommunications Medicine · 2022
13. A systematic review of economic evaluations of preoperative smoking cessation for preventing surgical complicationsInternational Journal of Surgery · 2022
14. Patient and Clinician Preferences for Genetic and Genomic Testing in Non-Small Cell Lung Cancer: A Discrete Choice ExperimentJournal of Personalized Medicine · 2022
15. Opinions and strategies of Australian health professionals on tackling cancer‐related financial toxicity: A nationwide surveyAsia-Pacific Journal of Clinical Oncology · 2022
16. The PiGeOn project: protocol of a longitudinal study examining psychosocial and ethical issues and outcomes in germline genomic sequencing for cancerBMC Cancer · 2018
17. The PiGeOn project: protocol for a longitudinal study examining psychosocial, behavioural and ethical issues and outcomes in cancer tumour genomic profilingBMC Cancer · 2018