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Desmoid Tumor Research Foundation

h-index: 3
Total citations: 33
Total papers: 13

Homepage: http://dtrf.org/

Recent papers from Desmoid Tumor Research Foundation

The impact of desmoid tumors: insights from the Desmoid Tumor Research Foundation Natural History Study, 2017–2023Orphanet Journal of Rare Diseases · 2025
Nirogacestat—the pathway to approval of the first treatment for desmoid tumors, a rare diseaseTherapeutic Advances in Rare Disease · 2025
Capturing Patient Voice to Improve Outcomes That Matter to Patients with Desmoid TumorCancer Management and Research · 2024
148P The impact of desmoid tumors on patients' quality of life: Desmoid Tumor Research Foundation Natural History StudyESMO Open · 2024
149P Treatment landscape for desmoid tumors: Desmoid Tumor Research Foundation Natural History StudyESMO Open · 2024
Are the Pieces Starting to Come Together for Management of Desmoid Tumors?Clinical Cancer Research · 2022