European Patients Forum

Recent papers from European Patients Forum

1. Regulatory Research Priorities for AI Use in the Medicine Lifecycle: A European Perspective with Global RelevanceClinical Pharmacology & Therapeutics · 2026
2. Lived experience and global health architecture reform: from afterthought to cornerstoneThe Lancet Global Health · 2026
3. Enhancing Patient-Centered Health Technology Assessment: A Modified Delphi Panel for PICOS Scoping in Spinal Muscular AtrophyJournal of Market Access & Health Policy · 2026
4. Evolution of reported patient and public involvement over time in randomised controlled trials in major medical journals and in their protocols: meta-epidemiological evaluationBMJ · 2025
5. Evaluating progress towards implementation of the European HTA Regulation: Insights generated from the European Access Academy's multi-stakeholder surveyHealth Policy and Technology · 2024
6. Standardising personalised diabetes care across European health settings: A person‐centred outcome set agreed in a multinational Delphi studyDiabetic Medicine · 2023
7. Improving Care and Empowering Adults Living with SMA: A Call to Action in the New Treatment EraJournal of Neuromuscular Diseases · 2021
8. The perspectives of patients and their caregivers on self-management interventions for chronic conditions: a protocol for a mixed-methods overviewF1000Research · 2020
9. Comparing the effectiveness and cost-effectiveness of self-management interventions in four high-priority chronic conditions in Europe (COMPAR-EU): a research protocolBMJ Open · 2020
10. EUPATI Guidance for Patient Involvement in Medicines Research and Development (R&D); Guidance for Pharmaceutical Industry-Led Medicines R&DFrontiers in Medicine · 2018
11. EUPATI and Patients in Medicines Research and Development: Guidance for Patient Involvement in Ethical Review of Clinical TrialsFrontiers in Medicine · 2018
12. EUPATI and Patients in Medicines Research and Development: Guidance for Patient Involvement in Regulatory ProcessesFrontiers in Medicine · 2018
13. Medicines Adaptive Pathways to Patients: Why, When, and How to Engage?Clinical Pharmacology & Therapeutics · 2018
14. Assessing the Involvement of the Patient Community in European Commission Co-Funded Health ProjectsJournal of Ambulatory Care Management · 2010