Developing a patient journey map to improve care and experience in Chinese patients with hereditary angioedema

Key Points

• The patient journey map identifies key touchpoints for care improvement, emphasizing direct patient feedback.
• Analysis led to the creation of targeted resources to enhance patient experience across multiple care settings.
• Theoretical framework guided the development of the mapping process for hereditary angioedema in Chinese patients.
• Findings highlight areas of patient care that are often overlooked, indicating a need for systemic change.