Evaluating Representativeness of Patient-Reported Outcomes in the Center for International Blood and Marrow Transplant Research (CIBMTR) Among HCT Recipients: A Five-Year Analysis

Key Points

• Patient-reported outcomes show varied representativeness among HCT recipients over a five-year period.
• Findings reveal discrepancies in data collection for clinical research, with implications for improving methodology.
• Longitudinal analysis tracks patient-reported outcomes using CIBMTR data to assess trends in blood and marrow transplant.
• Highlights the need for standardized reporting to better understand patient experiences in HCT.