Japanese Version of the Quality of Dying and Death in the PICU Instrument: Development and Validation in Eight Centers in Japan

Key Points

• To develop and validate the PICU-QODD-J instrument for assessing end-of-life care in pediatric intensive care units in Japan.
• Instrument development across eight centers in Japan.
• Validation of reliability and validity metrics.
• Evaluation of inter-rater reliability (IRR) in assessments.
• Demonstrated good overall reliability and validity of the PICU-QODD-J instrument.
• Noted low inter-rater reliability, indicating variability in assessments.
• Emphasized the importance of multiple perspectives in evaluating end-of-life care.