“If You Have CF, I Will Eat My Shoe”: Lived experiences and needs of individuals with adult-diagnosed cystic fibrosis

RATIONALE: Cystic Fibrosis (CF) is a genetic, multisystem diseaseCitation1 that can be diagnosed in both childhood and adulthood. Diagnosis of CF during childhood is well-documented in the literature, and there is substantial information available for the parents of children with CF.Citation2 However, there is less known about the experiences of those with adult-diagnosed CF coupled with limited to no tailored resources for those who receive a later CF diagnosis.Citation3,Citation4