What question did this study set out to answer?

The research aims to identify the gaps in comprehensive care for patients with cystic fibrosis (pwCF) and suggest improvements in healthcare integration.

February 2, 2026The Journal of the American Board of Family Medicine0 citationsOpen Access

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Evaluation of the Need for Comprehensive Care for Patients with Cystic Fibrosis

KKKendall KolkUniversity of Iowa Health Care PSPatrick L. SinnUniversity of Iowa TPTahuanty PeñaUniversity of Iowa Health Care

Key Points

The research aims to identify the gaps in comprehensive care for patients with cystic fibrosis (pwCF) and suggest improvements in healthcare integration.
Evaluated interactions between CF clinicians and primary care providers (PCPs)
Assessed PCP comfort levels in treating high-acuity chronic conditions
Analyzed the integration of PCPs into CF care teams
Identified significant gaps in healthcare for pwCF without regular PCP interactions
CF clinicians lack updated knowledge on primary care management
PCPs express discomfort in managing complex conditions like CF

Abstract

There is a gap in healthcare for pwCF, especially for those who do not routinely interact with a PCP. CF clinicians may not be up to date on primary care management and PCPs may not be comfortable with treating patients with a high acuity chronic condition. PCPs should be better integrated into the CF care team to ensure pwCF are receiving comprehensive care.

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Evaluation of the Need for Comprehensive Care for Patients with Cystic Fibrosis

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Abstract

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