Quality of life in patients with transfusion-dependent hemoglobinopathies: evidence from an expert centre in Greece

Key Points

• Quality of life is significantly impaired for patients with transfusion-dependent hemoglobinopathies, reflecting their daily challenges.
• An important metric indicates that 70% of patients report low health-related quality of life scores based on validated surveys.
• Clinical assessment highlights the necessity for better management strategies to enhance overall patient well-being.
• This analysis shows the critical role of addressing patient-reported outcomes in clinical practice for hemoglobinopathy management.