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BACKGROUND: The study examined a UK sample of 57 young people with Tourette syndrome (TS). AIMS: The purpose of this study was to consider the impact of TS on young people's Quality of Life (QoL). METHODS: The study used a mixed methods design, combining focus groups and questionnaire data. Child report questionnaires measured QoL and TS symptom severity. RESULTS: The results showed that the QoL of children with TS was significantly worse than that of children in a UK normative sample. Analysis of transcripts from the groups identified four main themes; 'TS can be distressing and disabling', 'struggling to fit into society's expectations of normal behaviour', 'needing to control tics' and 'TS is one part of who I am'. CONCLUSIONS: Poorer QoL was associated with increased symptom severity in terms of tics, Attention Deficit Hyperactivity Disorder diagnosis and obsessive compulsive behaviours.
Cutler et al. (Fri,) studied this question.
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