Research with Disabled Children: How Useful is Child-centred Ethics?

The title of a collection on 'ethics and methodology of research with children' implies that research with children necessarily raises unique questions about ethics and methods. Our paper questions whether this is so, what the unique questions might be and how they arise. We consider that any extra complications in research with children are common to research with other 'minority' groups. The main complications do not arise from children's inabilities or misperceptions, but from the positions ascribed to children in late twentieth-century Western societies. Clarity about the social origins of any complications in research with children is crucial if these complications are to be addressed. Ethics, methods, theories, data and policy conclusions are inextricably interwoven, and it is important to acknowledge how initial theories inevitably shape policies. Reasons are given for preferring rights-based to child-centred ethics.