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The Swiss Personalized Health Network (SPHN) is a government-funded initiative developing federated infrastructures for a responsible and efficient secondary use of health data for research purposes in compliance with the FAIR principles (Findable, Accessible, Interoperable and Reusable). We built a common standard infrastructure with a fit-for-purpose strategy to bring together health-related data and ease the work of both data providers to supply data in a standard manner and researchers by enhancing the quality of the collected data. As a result, the SPHN Resource Description Framework (RDF) schema was implemented together with a data ecosystem that encompasses data integration, validation tools, analysis helpers, training and documentation for representing health metadata and data in a consistent manner and reaching nationwide data interoperability goals. Data providers can now efficiently deliver several types of health data in a standardised and interoperable way while a high degree of flexibility is granted for the various demands of individual research projects. Researchers in Switzerland have access to FAIR health data for further use in RDF triplestores.
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Vasundra Touré
SIB Swiss Institute of Bioinformatics
Philip Krauss
Accenture (Switzerland)
Kristin Gnodtke
SIB Swiss Institute of Bioinformatics
Scientific Data
SHILAP Revista de lepidopterología
University Hospital of Zurich
University Hospital of Geneva
SIB Swiss Institute of Bioinformatics
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Touré et al. (Fri,) studied this question.
synapsesocial.com/papers/69db33233d9adb00e76847dd — DOI: https://doi.org/10.1038/s41597-023-02028-y