November 17, 2023Open Access

Estimating mortality in rare diseases using a population-based registry, 2002 through 2019

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Abstract

Despite progress in diagnosis, treatment and care in recent years, RD patients globally have higher mortality rates and reduced survival compared to the general population, with specific variations according to gender, age and disease group.

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Authors

Monica Mazzucato

Laura Visonà Dalla Pozza

Cinzia Minichiello

Journals

SHILAP Revista de lepidopterología

Orphanet Journal of Rare Diseases

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Institutions

University of Padua

Regione del Veneto

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Estimating mortality in rare diseases using a population-based registry, 2002 through 2019

Key Points

Abstract

Citation Network

Connected Papers

Discussion

Authors

Journals

Actions

Institutions

References and Citations

Citation Network

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Discussion

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