Abstract Purpose The aim of this study was to explore patients’ experiences of being prepared for allogenic haematopoietic cell transplantation and to explore their perceived self-efficacy and preparedness for self-care after allogenic haematopoietic cell transplantation. Methods Qualitative descriptive design was adopted using content analysis to analyse individual interviews. Results An overarching theme, Life is taken apart, then you have to know how to put the pieces together, and four sub themes, Convert information into something understandable, Taking responsibility, maintaining and preparing for an uncertain time in life, Fumbling independence, and Reorientating in an altered body places new demands on self-care illustrates the dismantlement of life during treatment and how actions and approaches can build a new life. Conclusions Emphasis was placed on preparation before admission, this applied to both healthcare professionals and participants. However, during admission, preparation decreased and the time was not used for preparatory learning. This meant that participants were well prepared for the acute phase but unprepared for life after completion of treatment. Self-efficacy was perceived as high among the participants who sought information about taking care of their health. Implication for cancer survivors This study provides insight into, and knowledge about, how patients prepare before, during, and after treatment. This knowledge should primarily be directed towards healthcare professionals to be used for future patients who may need advice and support, as well as continued preparation for a life after transplantation.
Holmberg et al. (Tue,) studied this question.