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Spinal muscular atrophy (SMA) is an autosomal recessive neuromuscular disorder. With the emergence of disease-modifying therapies, the prognosis of SMA has significantly improved, drawing increased attention to the importance of home rehabilitation and nursing management. Long-term, standardized home rehabilitation and nursing can delay the progression of SMA, enhance the psychological well-being, and improve the quality of life of both patients and caregivers. This article provides an overview of the goals of home rehabilitation, basic functional training methods, respiratory management, and nutritional management for SMA patients, as well as psychological health issues, emphasizing the significance of obtaining appropriate home rehabilitation and support during the care process.
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Ming-Yue Leng
Army Medical University
Hong-Hao Peng
Army Medical University
Zhifeng Wu
Jiangxi University of Traditional Chinese Medicine
Army Medical University
Chongqing Medical University
Dalian Medical University
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Leng et al. (Mon,) studied this question.
synapsesocial.com/papers/68e6f39db6db64358766dea6 — DOI: https://doi.org/10.7499/j.issn.1008-8830.2310037