Gene mapping: using law and ethics as guides

Preface. James Watson and Eric Juengst: Foreword. 1: George J. Annas and Sherman Elias: Overview of the major social policy issues raised by the human genome project. 2: Victor McKusick: The Human Genome Project: Plans, status and applications in biology and medicine. Social Policy Implications. 3: Judith P. Swazey: Those Who Forget Their History: Lessons from the recent past for the Human Genome quest. 4: Robert Proctor: Genomics and Eugenics: How fair is the comparison?. 5: Patricia King: The Past as Prologue: Race, class, and gene discrimination. The Human Project Initiative and the Human Condition. 6: Evelyne Shuster: Determinism and Reductionism: A greater threat because of the Human Genome project. 7: Arthur Caplan: If gene therapy is the cure, what is the disease?. 8: Sherman Elias and George J. Annas: Somatic and germline gene therapy. How Changes in Genetics Change Clinical Practice. 9: Ruth Macklin: Privacy and control of genetic information. 10: Genetic predisposition and the Human Genome Project: New quandries in clinical medicine. Raymond White: Part I:. Thomas Caskey: Part II:. 11: Carrier Screening for Cystic Fibrosis: A case study in setting standards of medical practice. 12: James Sorenson: What we still don't know about genetic screening and counseling. 13: John A. Robertson: The potential impact of the Human Genome project on procreative liberty. 14: Rebecca Eisenberg: Patent rights in the Human Genome project. 15: Thomas Murray: Speaking unsmooth things about the Human Genome project. 16: Leroy Walters: A national advisory committee on genetic testing and screening. Conclusion. 17: George J. Annas and Sherman Elias: Social policy research priorities for the Human Genome project. Glossary. Index