Abstract Background and aims Stroke is one of the leading causes of death and disability worldwide, posing significant challenges to healthcare systems. This condition leads to high morbidity, affecting both the functionality and emotional well-being of patients and their families. Many face uncertainties about recovery, with feelings of anxiety and insecurity. This study aims to understand these emotional aspects by analyzing the fears, insecurities, and expectations of patients. It also investigates financial and social challenges post-stroke, aiming to identify gaps in care and propose strategies for more humanized and effective healthcare. Methods A qualitative study on stroke at a tertiary hospital in the Midwest region of Brazil, involving interviews and thematic analysis to understand patient experiences, focusing on privacy and comfort, ensuring a deep and systematic analysis of the obtained responses. Results The study included 49 stroke patients, mostly men, with the majority having some prior knowledge of the disease. Analyzed emotions included fear and regret, with 56.3% believing in the possibility of prevention. Despite many not perceiving improvements after thrombolysis, 87.8% hoped to return to normalcy. Major fears were related to new strokes and dependence. Financially, 44.9% anticipated significant impacts, exposing concerns about stability and the need for lifestyle changes, reinforced by faith as an important support. Conclusions The study indicated that 40.8% of stroke patients are unaware of the disease. Educational measures and psychological support are essential. Many reported fears of death, paralysis, and anguish, highlighting the need for a multidisciplinary team for support. Conflict of interest
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Marco Túlio Araújo Pedatella
Clara Barreira
Rodrigo Castro
European Stroke Journal
Instituto de Olhos de Goiânia
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Pedatella et al. (Fri,) studied this question.
www.synapsesocial.com/papers/69fd7fb8bfa21ec5bbf08411 — DOI: https://doi.org/10.1093/esj/aakag023.1987