e13793 Background: Survivorship care plans (SCPs) are designed to address the needs of cancer survivors transitioning from active treatment to long-term follow-up. They usually encompass such things as clinical surveillance, management of late and long-term effects, psychosocial support, care coordination, and financial domains. Recently, the American College of Surgeons Commission on Cancer (CoC) shifted from a defined approach to an ongoing support program model; consequently, SCPs are no longer mandatory. However, CoC Standard 4. 8 mandates a Survivorship Program but formal SCPs are optional. There is a need for further research to identify and address barriers to care in the absence of formal SCPs. In 2015, Atrium Health Levine Cancer (LCI) established a formal Section of Oncology Survivorship. We describe the characteristics, unmet needs, and benefits to cancer patients referred for survivorship via SCPs. Methods: This study utilized an internal quality improvement registry. Inclusion criteria: age ≥18 years and consultation between 2015 and 2020. Patients were asked eight questions before and after their SCP encounter regarding their understanding of: 1. cancer type and stage, 2. management of current side effects, 3. possible future side effects, 4. symptoms of recurrence, 5. recurrence monitoring protocols, 6. healthy lifestyle behaviors, 7. the role of the primary care physician (PCP), 7. available emotional support resources. Responses were rated as: “completely understand”, or “do not understand”. Finally, we evaluated whether patients' baseline knowledge Pre-SCP assessments) showed significant changes or trends over the study period using univariable logistic regression. Results: We identified 1, 326 patients. The mean age was 61 years (SD: ± 13) ; 83% female, 79% White, and 19% Black. Most were married (58%) and utilized Medicare/Medicaid (57%). Cancer types included breast (65%), gastrointestinal (8%), lung (7%), head and neck (5%), and gynecologic (4%). Thirty-eight percent earned ≤50, 000 annually, and SCPs done by advanced practice nurse in 84%. Before vs after SCP encounters, the percentage rating their understanding as "somewhat" or "do not understand" decreased significantly across all domains: Cancer type/stage: 35% → 3% Current side effect management: 56% → 5% Future side effects: 74% → 7% Recurrence symptoms: 65% → 4% Monitoring protocols: 58% → 2% Healthy behaviors: 48% → 3% Role of PCP: 50% → 3% Emotional resources: 52% → 4% Pre-SCP scores did not show any knowledge improvement over the study period. Conclusions: Baseline knowledge remained unchanged over the study period, and significant deficits remained. SCP encounters significantly improved patient understanding of their disease, self-care, and available resources. Further research is needed to identify the causes of persistent knowledge deficits and to optimize survivorship support in the absence of mandated SCPs.
Lasheen et al. (Thu,) studied this question.
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