What question did this study set out to answer?

The aim is to address health data sharing for improved care and public health within the European Health Data Space framework.

May 24, 2026Open Access

Shared data, shared value - Empowering Member States & stakeholders across the health Ecosystem.pdf

Key Points

The aim is to address health data sharing for improved care and public health within the European Health Data Space framework.
Discussed the transition of the European Health Data Space from legislation to implementation.
Highlighted participation of EU policymakers, Member State representatives, and industry leaders.
Examined challenges including interoperability gaps, trust issues, and governance concerns.
Identified the need for trusted governance to enhance health data sharing.
Emphasized the importance of common rules for creating usable health services by set 2029 and 2031 milestones.
Stressed that practical challenges must be overcome for the EHDS to create genuine value.

Abstract

This short paper discusses how the European Health Data Space (EHDS) is moving from legislation to real implementation across Europe. It explains why health data sharing matters for better care, research, AI, innovation and public health, while highlighting the practical challenges Member States face, including uneven digital maturity, interoperability gaps, trust, governance and citizen rights. Based on the plenary discussion, the paper connects the contributions of EU policymakers, Member State representatives, industry and digital health implementers to current EHDS developments, including implementing acts, MyHealth@EU, HealthData@EU, TEHDAS2, Health Data Access Bodies and AI in healthcare. Its main argument is that the EHDS will only create value if Europe turns common rules into usable, trusted and well-governed services by the 2029 and 2031 implementation milestones.

Shared data, shared value - Empowering Member States & stakeholders across the health Ecosystem.pdf

Key Points

Abstract

Cite This Study