Abstract Genomic biobanks are increasingly embedded in the United States’ criminal justice system and scientific research institutions. Yet, we do not clearly understand how much the public supports these societal uses, why they do (or do not), and whether public perspectives are even meaningful given minimal familiarity with biobanks. Few studies have queried representative samples of the U.S. public, and almost all address only one moment in time and one of the two uses. In contrast, we draw on original survey data that (1) address scientific and forensic biobanks, (2) are representative of the U.S. public, (3) include re-interviews several years later, and (4) mix qualitative and quantitative measures of opinion. We find a public using value-based reasoning to express a mix of optimism and caution. We conclude that well-constructed surveys enable policymakers and experts to consider lay views as they craft policy relevant to genomics.
Dost et al. (Wed,) studied this question.
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