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February 8, 20260 citationsOpen Access

Making It Work : The Invisible Work of Mothers in Pursuit of Inclusion in School Settings

JHJessica HarasymPRPaige ReevesSPShanon Phelan

Key Points

  • This research examines the unacknowledged labor of mothers striving for inclusion in education for disabled children.
  • Conducted semi-structured interviews with nine mothers of disabled children.
  • Utilized reflexive thematic analysis to identify dimensions of labor.
  • Contextually situated within a collective case study framework.
  • Identified four dimensions of invisible work: working within, to fit, crafting workarounds, and above/beyond the system.
  • Revealed reliance on mothers to bridge gaps between policy and lived experiences.
  • Highlighted how mothers negotiate and resist systemic ableism through their efforts.

Abstract

Inclusive education is at the forefront of transnational policy agendas. Yet, normative, deficit-oriented disability discourses and institutional gaps continue to shape how inclusion is enacted in schools, often displacing extensive and unacknowledged labour onto families, especially mothers. Drawing on feminist theories of invisible work, this article critically examines the everyday labour performed by mothers of disabled children as they navigate inclusive education systems in Alberta, Canada. Situated within a broader collective case study, this analysis asks: What forms of invisible work do mothers undertake in pursuit of inclusion within education systems labelled as inclusive? Semi-structured interviews were conducted with nine mothers of disabled children. Reflexive thematic analysis illuminated four intersecting dimensions of invisible work: (1) working within the system, (2) working to fit the system, (3) crafting system workarounds, and (4) working above and beyond the system. These forms of work reveal how inclusive education systems rely on mothers to bridge the gap between policy rhetoric and lived experiences. Findings illuminate how mothers’ invisible work simultaneously sustains, negotiates, and resists systemic ableism, highlighting the need to recognize and redistribute this work and reimagine inclusion as a shared structural responsibility rather than an individual, maternal pursuit.

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Cite This Study

Harasym et al. (2026) studied this question.

synapsesocial.com/papers/698828770fc35cd7a8847eebhttps://doi.org/10.14288/1.0451410
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