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February 28, 2026BJGP Open0 citationsOpen Access

Exploring the coding of migration status in English primary care from 2011 to 2025 using OpenCodeCounts

YBYamina BoukariLHLucinda HiamJSJames Scuffell

Key Points

  • The study aims to explore the recording of migration-related codes in primary care electronic health records to inform future research.
  • Utilized OpenCodeCounts to analyze SNOMED CT code usage from 2011 to 2025.
  • Created migration-related codelists based on international coding standards.
  • Compared code usage with migration statistics from the Home Office and 2021 Census.
  • Identified 34.2 million uses of 1119 migration-related codes during the study period.
  • Coding of migration status increased over time, especially after 2020.
  • Language-related codes constituted 65% of all code usage; trends show mixed agreement with Census data.
  • Legal status coding was predominantly focused on asylum/refugee, with low overall rates.

Abstract

Background The migration status of the 9.8 million migrants living in England is not consistently recorded in primary care electronic health records (EHRs). Codelist approaches enable creation of cohorts of individuals who have had a predefined, optional migration-related code (e.g. “refugee”) added to their EHR. Aims We aimed to explore the use of migration-related SNOMED CT codes to inform future research using primary care data. Design & setting We used our OpenCodeCounts tool to explore data published by NHS England on SNOMED CT code usage in English primary care. Method We created migration-related codelists and described their use from 1st August 2011 to 31st July 2025. To understand code usage in the context of known information on migrants in England, we compared code usage to trends in migration-related statistics from the Home Office and the 2021 Census. Results There were 34.2 million uses of 1119 migration-related codes from 2011 to 2025. Migration-related coding increased over time, generally exceeding the increase observed for coding overall, with a sharp increase from 2020, particularly for country-of-birth and language. Language-related coding represented 65% of code usage and where country of birth was recorded, there was mixed agreement with the Census. Coding of immigration legal statuses was low and overwhelmingly about asylum/refugee status. Conclusion Utilising OpenCodeCounts, we demonstrate the feasibility of using migration-related SNOMED CT codelists within primary care EHRs and highlight some of the potential biases that cohorts created based on these codelists may have to inform future research.

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Cite This Study

Boukari et al. (2026) studied this question.

synapsesocial.com/papers/69a286b80a974eb0d3c01de8https://doi.org/10.3399/bjgpo.2025.0138
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