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March 5, 2026International Journal of Women s Health1 citationsOpen Access

Live Births Following IVF-FET in Two Adult Sisters with Nonclassic P450 Oxidoreductase Deficiency: A Case Report Identifying a Novel POR Variant

YTYichang TianYPYan PeiYFYing Fang

Key Points

  • This report aims to illustrate the reproductive outcomes in two sisters diagnosed with nonclassic P450 oxidoreductase deficiency.
  • Described case of two sisters with compound heterozygous POR variants.
  • Utilized progestin-primed ovarian stimulation and GnRH agonist protocols for treatment.
  • Adopted a freeze-all strategy due to elevated progesterone levels.
  • Performed hormone replacement therapy followed by frozen embryo transfer.
  • Singleton live births achieved in both sisters.
  • Younger sister experienced preeclampsia necessitating preterm cesarean delivery.
  • Identified novel POR variant c.1952_1966del, expanding the mutation spectrum of PORD.

Abstract

Background: Cytochrome P450 oxidoreductase deficiency (PORD) is an exceptionally rare form of congenital adrenal hyperplasia (CAH) characterized by impaired activity of multiple microsomal cytochrome P450 enzymes. In adult women, PORD frequently presents with nonspecific reproductive manifestations such as menstrual irregularities, infertility, and ovarian cysts, often mimicking polycystic ovary syndrome (PCOS) or premature ovarian insufficiency (POI). To date, successful pregnancies in affected women remain extremely rare. Case Presentation: We describe two biological sisters with compound heterozygous POR variants c. 1811A>G (p. Tyr604Cys) and c. 1952₁966del (p. Gly651 _ His655del), both presenting with infertility and recurrent ovarian cysts but initially misdiagnosed as PCOS or POI. Both exhibited elevated serum progesterone and 17-hydroxyprogesterone (17-OHP) without overt androgen excess, consistent with the paradoxical hormonal signature of PORD. The elder sister underwent a progestin-primed ovarian stimulation (PPOS) protocol, while the younger received a short GnRH agonist protocol; in both cases, a freeze-all strategy was adopted due to supraphysiologic progesterone levels. Subsequent hormone replacement therapy frozen embryo transfer (HRT-FET) combined with glucocorticoid supplementation resulted in singleton live births in both patients. The younger sister developed preeclampsia requiring preterm cesarean delivery, highlighting potential obstetric risks. Conclusion: These cases represent the first report of two siblings with nonclassic PORD achieving live births through IVF-FET. Moreover, we identified a previously unreported POR variant, c. 1952₁966del, p. Gly651His655del, which expands the known mutational spectrum of PORD in the Chinese population. Our findings highlight the importance of early genetic testing in women with atypical infertility, recognition of the distinctive hormonal profile of PORD, and the value of glucocorticoid-supported artificial-cycle frozen embryo transfer as an effective reproductive strategy. Keywords: cytochrome P450 oxidoreductase deficiency, POR gene mutation, infertility, in vitro fertilization, frozen embryo transfer

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Cite This Study

Tian et al. (2026) studied this question.

synapsesocial.com/papers/69a91d55d6127c7a504c013chttps://doi.org/10.2147/ijwh.s580471
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