national vs. regional level, and according to the roles and types of participating hospitals and multidisciplinary teams.Interviews identified preconditions for strengthening rare cancer care organisation, including adequate financing and medical collaboration (e.g.promoting clinical research).Conclusions: Organisation of rare cancer care in the Netherlands varies substantially across cancer types.This heterogeneity indicates a need for more structured organisation of expertise, clearer and more consistent agreements, and cross-learning from good practice examples.
Yasar et al. (2026) studied this question.