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March 21, 2026FPID Bulletin The Bulletin of the Faculty for People with Intellectual Disabilities0 citations

North Thames regional special interest group study day: Reducing restrictive practices and improving end of life care for people with intellectual disabilities; London, 25 November 2025

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RGRamona GuarinoSPSabrina Pilav

Key Points

  • The aim is to reduce restrictive practices and improve end-of-life care for individuals with intellectual disabilities.
  • Organized an in-person study day focused on presentations and discussions.
  • Introduced the HOPE(S) clinical model for reducing segregation.
  • Facilitated discussions with invited speakers on end-of-life care and dementia.
  • Presented a human rights-based approach to enhance care quality.
  • Discussed specific challenges in end-of-life care for those with intellectual disabilities.

Abstract

The North Thames regional special interest group of psychologists working with people with intellectual disabilities, organised an in-person study day in the BPS London offices on 25th November 2025. The first part of the day focused on the presentation of HOPE(S) clinical model: a Human Rights–Based Approach to Reducing Long-Term Segregation. The second presentation was related to End-of-Life Care and Dementia in People with Intellectual Disabilities. There were two invited speakers, with opportunities for attendees to reflect on and discuss each of the presentations. Below we have collated a summary of each of the presentations, and onward contact details for the presenters, for readers who are interested to find out more.

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Cite This Study

Guarino et al. (2026) studied this question.

synapsesocial.com/papers/69be371c6e48c4981c67676fhttps://doi.org/10.53841/bpsfpid.2026.24.1.69
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Also Consider

Synapse has enriched 5 closely related papers on similar clinical questions. Consider them for comparative context:

  1. 1What are we planning, exactly? The perspectives of people with intellectual disabilities, their carers and professionals on end-of-life care planning: A focus group study2024 · 15 citations
  2. 2Growing older with intellectual disability: insights, perspectives and future research directions from a stakeholder event2025 · 1 citations
  3. 3Getting It Out There: Reflections on the Process and Impact of Public Engagement Activities in a Study on End‐of‐Life Care Planning With People With Intellectual Disabilities2026
  4. 4‘Collaborative solutions – how can we make this work together?’: Psychologists’ reflections on working with staff teams supporting people with intellectual disabilities2025
  5. 5Patient and practitioner workshops for an intellectual disabilities and epilepsy neuropsychiatric genetic research database register: Ethical dilemmas for study design2026