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March 26, 2026The Annals of Family Medicine0 citationsOpen Access

Diagnoses Live in Relationships: Bedside Sense in the Age of Precision Medicine

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KYKe YuanFirst Affiliated Hospital Zhejiang UniversityHLHuifei LuHZHuijing Zhan

Key Points

  • To explore how genomic testing can impact clinical decisions and the importance of understanding patient context.
  • Descriptive case study of a boy with short stature and a genomic variant.
  • Family segregation testing to assess genetic traits among relatives.
  • Reflection on diagnostic implications and communication with the family.
  • Initial diagnosis suggested a genetic syndrome based on genomic testing.
  • Family testing revealed inconsistencies in the genetic variant's presence among relatives.
  • The patient responded well to growth hormone therapy, indicating treatable growth hormone deficiency.

Abstract

Genomic tests can illuminate and mislead. I cared for a school-aged boy with short stature whose copy-number variant at 1q21.1—typically associated with variable neurodevelopmental and cardiac features rather than isolated short stature—seduced me into a syndromic label. I told his family that a “pathogenic” deletion likely explained his growth. Months later, family segregation testing contradicted the story: some short relatives lacked the deletion; a taller cousin carried it. His excellent response to growth hormone pointed to treatable growth hormone deficiency, not a genetic syndrome. I returned to the family to revise—both the diagnosis and my words. This reflection traces how the promise of precision medicine can eclipse bedside sense, and how apology, delabeling, and a new clinic script helped me re-center care on phenotype, family context, and uncertainty handled with humility.

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Cite This Study

Yuan et al. (2026) studied this question.

synapsesocial.com/papers/69c4ccc9fdc3bde44891862ahttps://doi.org/10.1370/afm.250569
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