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March 29, 2026Future Healthcare Journal2 citationsOpen Access

Good care for older people at the end of life: Shared responsibilities, flexible boundaries

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FDFelicity DewhurstPEPolly EdmondsRHRowan Harwood

Key Points

  • To explore how end-of-life care for older adults can be improved through shared responsibilities across multiple care settings.
  • Analysis of care experiences focusing on frailty and multimorbidity in older adults.
  • Identification of challenges in current care models through clinical vignettes.
  • Proposed a neighbourhood-based, person-centred care model.
  • Fragmented care leads to burdensome interventions and poor experiences for older adults.
  • Effective end-of-life care requires flexible boundaries among various care sectors.
  • Shared decision-making and coordinated anticipatory care plans are essential for improving comfort and dignity.

Abstract

The majority of deaths occur among older adults, many living with frailty, multimorbidity, disability and/or cognitive impairment. When care is organised around single diseases and episodic crises, people can experience fragmented, reactive care and burdensome interventions. We argue that good end-of-life care is a shared responsibility across settings, requiring flexible boundaries between geriatric medicine, palliative care, primary care, social care and the voluntary sector. Clinical vignettes illustrate challenges including prognostic uncertainty, treatment burden, transitions between services, and achieving preferred place of care and death. We propose neighbourhood-based, person-centred care that anticipates deterioration: shared decision-making and parallel planning; minimising treatment burden (including deprescribing); coordinated anticipatory care plans with accessible records; and timely care in the last months focused on comfort, dignity and family support. Delivery depends on appropriate funding and workforce capacity.

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Cite This Study

Dewhurst et al. (2026) studied this question.

synapsesocial.com/papers/69c8c0b0de0f0f753b39b7eehttps://doi.org/10.1016/j.fhj.2026.100515
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