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April 5, 2026Journal of Arts & Communities0 citations

Navigating uncertainty: A tripartite creative knowledge exchange among artists, researchers and people with lived experience of dementia – A co-created space for living uncertainty

MEMar EstarellasTGTatiana A. GiovannucciLSLucy Steggals

Key Points

  • The aim is to examine how creative practices can help navigate uncertainty in dementia care.
  • Conducted an interdisciplinary project with artists, researchers, carers, and individuals with dementia
  • Developed a series of workshops and collaborative sessions over three months
  • Utilized various artistic mediums including art, writing, and digital tools
  • Created co-produced resources like a digital logbook and an artistic card deck
  • Held a public exhibition to showcase the outcomes and shared experiences
  • Participants reported increased empathy and understanding within the group
  • Artistic methods fostered a collaborative environment that enhanced adaptability
  • The project demonstrated how embracing uncertainty can be a transformative experience
  • Collective insights helped participants navigate the challenges of living with dementia

Abstract

In a world increasingly shaped by uncertainty, Ebb & Flow emerged as a convergence of dementia research, caregiving and artistic practice within a collaborative knowledge exchange. This article examines how uncertainty is experienced and navigated through an interdisciplinary project involving artists, researchers, carers and individuals living with dementia. Developed under the Trellis:Arbor programme at the University College London, Ebb & Flow fostered a creative and inclusive ‘humanspace’ to explore uncertainty, metaphorically guided by the unpredictability of the sea. Over three months, participants used art, writing, digital mediums and co-created resources like a digital logbook and the Ebb & Flow card deck, promoting dialogue, empathy and resilience. The project culminated in a public exhibition showcasing shared experiences and artistic outcomes. Findings highlight that integrating artistic methods into dementia care and research environments significantly enriches empathy, adaptability and collective understanding, demonstrating the transformative potential of embracing uncertainty collaboratively.

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Cite This Study

Estarellas et al. (2025) studied this question.

synapsesocial.com/papers/69d1fd9ca79560c99a0a3c01https://doi.org/10.1386/jaac_00072_1
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