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May 3, 20260 citations

The World Federation of Neurology Specialty Group in ALS/MND: toward strategic partnership and new frontiers.

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MKMatthew C KiernanAGAngela GengeJGJulian Grosskreutz

Key Points

  • To establish a strategic partnership aimed at enhancing global coordination in ALS/MND research and care.
  • Memorandum of understanding signed between World Federation of Neurology Specialty Group and International Alliance of ALS/MND Associations.
  • Joint initiatives include international meetings, clinical trials, and data-sharing efforts to improve knowledge and treatment.
  • Focus on equitable access and capacity building in low- and middle-income regions.
  • Establishment of shared priorities for ALS/MND patient support and research.
  • Commitment to enhance collaborative efforts for improved diagnosis and treatments.
  • Improvement in global coordination for ALS/MND clinical care and education.

Abstract

A memorandum of understanding was recently established between the World Federation of Neurology Specialty Group and the International Alliance of ALS/MND Associations. This new strategic partnership brings together leading clinicians and researchers with national and regional organizations dedicated to supporting ALS patients, their families, and caregivers. The purpose of partnership is to strengthen global coordination in research, education, advocacy, and clinical care for people living with MND. The agreement outlines shared priorities, including promoting equitable access to diagnosis and treatment, supporting capacity building in low- and middle-income regions, and facilitating the exchange of scientific knowledge and best practice. Both parties commit to joint initiatives such as international meetings, guideline development, clinical trials and data-sharing efforts that advance understanding of disease mechanisms and therapeutic approaches. Together, these organizations represent the scientific and human dimensions of the ALS challenge. Through partnership, the WFN Specialty Group and the International Alliance aim to accelerate progress toward improved outcomes and, ultimately, effective treatments for MND worldwide.

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Cite This Study

Kiernan et al. (2026) studied this question.

synapsesocial.com/papers/69f6e5ac8071d4f1bdfc65f8https://doi.org/10.1080/21678421.2026.2663915
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