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May 15, 2026The Journals of Gerontology Series B0 citationsOpen Access

Latino Family Caregivers: “It’s What We Do—We Take Care of Our Own”

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BSBianca ShieuDNDaria B. NeidreLSLixin Song

Key Points

  • The study aims to understand how culture affects the caregiving experiences of Latino family caregivers of individuals with dementia.
  • Descriptive qualitative design
  • Individual semi-structured interviews conducted via Zoom with Latino caregivers
  • Community-Based Participatory Research approach with an advisory council involved
  • Two main themes identified: 'The Influence of Culture on Caregiving' and 'Barriers to Care'.
  • Culture serves as both a source of resilience and distress for caregivers.
  • Identified subthemes include motivations for care, cultural beliefs about dementia, and systemic financial challenges.

Abstract

OBJECTIVES: To better understand the interplay of culture and family caregiving among Latinos, we explored the perceptions of caregivers of persons living with dementia on how their culture informs the care they provide. METHODS: This study used a descriptive qualitative design to explore the perceptions of Latino family caregivers of persons living with dementia. A Community-Based Participatory Research (CBPR) approach underpinned the study design and execution, with a Latino Caregiver Advisory Council (LCAC) engaged in study design, recruitment, and interpretation. Individual semi-structured interviews were conducted via Zoom with Latino family caregivers of persons living with dementia from South Central Texas, in either English or Spanish. The interview guide consisted of questions about participants' perceptions of caregiving and culture. Content analysis was used to analyze the transcripts. RESULTS: Among 13 caregivers, we identified two overarching themes, "The Influence of Culture on Caregiving" and "Barriers to Care," that together illustrate how cultural values serve as a profound source of both resilience and distress. We identified key subthemes related to the influence of culture (i.e., motivations for providing care, who provides this care, and where it is provided) and barriers to care (i.e., cultural beliefs about dementia, structural barriers to accessing resources, and systemic financial challenges). DISCUSSION: Our findings indicate that culture can be a source of strength and a source of stress for Latino family caregivers. These results highlight the need for tailored caregiver support intervention programs that recognize the cultural influence shaping how families give and receive care.

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Cite This Study

Shieu et al. (2026) studied this question.

synapsesocial.com/papers/6a06b95be7dec685947ac006https://doi.org/10.1093/geronb/gbag086
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